It was months ago, and I’m still haunted by the phrase. I was on a call for work, where a group of biomedical researchers was discussing ethical issues in engaging sensitive and vulnerable populations in genomic research. (An aside: why is this such an important and timely topic? In genomics, there is a well-warranted Read More…
Tag: data ethics
Data ethics: risk- versus respect-based concerns
Personal data. We walk around emitting little streams of it, from our browsing history and smartphone apps to our credit card purchases. Most of the time we don’t even think about it — it’s become as a natural and invisible a process as shedding skin cells. Meanwhile, various entities are out there hoovering up all Read More…